Are you one of the nearly 100,000 Western New Yorkers estimated to have long COVID? Sign up for this registry and you can help researchers and clinicians gain a deeper understanding of long COVID’s prevalence and impact in our community.
We aim to identify individuals who have recovered from acute COVID, including those with long COVID. By signing up for our registry, you will ultimately be helping us:
Long COVID — also referred to as post-acute sequalae of SARS-CoV-2, or PASC — afflicts as many as a third of the nearly 80 million people across America who have been infected with coronavirus.
Long COVID is a chronic condition that remains uncertain. There is no test to detect long COVID, and a truly accurate number of people affected does not currently exist.
With more than 23 symptoms documented, the most common symptoms seem to be:
If you suspect you may have long COVID, we encourage you to sign up now for our long COVID registry.
It is estimated that close to 100,000 people in our region have long COVID, with about 25,000 residing in the City of Buffalo.
Examining the data submitted through the registry can help researchers and clinicians gain a better understanding about long COVID. With this deepened knowledge, they can help design research and treatment options for those with long COVID.
We’re developing a biorepository that will include systematically collected biological samples from individuals with long COVID. Samples and associated metadata will be made available to researchers at UB and affiliated institutions to understand the disease and develop innovative therapies.
We propose to provide seed money to explore innovative treatment ideas and lay groundwork for leveraging federal and industry funding.
The registry (known as the UBCoV registry for short) is a survey, or a form, that you can complete if you have or think you have long COVID.
The registry information submitted will help clinical researchers understand long COVID in our community.
The registry gives you an opportunity to share your story, symptoms and experience with COVID-19 and long COVID.
Studies vary in the prevalence of long COVID after COVID-19 infection, with reported incidences of 4 to 48%.
Researchers are still learning about long COVID, its true definition and what recovery looks like for patients. You can help them by registering now.
The UBCoV registry was developed as a result of a collaboration amongst:
Some good news: There is reason to believe that keeping up with vaccines may reduce the chances of developing long COVID.