Do you have long COVID? Sign up and you can help researchers learn about long COVID’s impact in our community.
We aim to help individuals who have had long COVID. By signing up, you will help us:
- evaluate the long COVID problem in Western New York
- provide education to the community
- identify volunteers to participate in studies
Long COVID affects about a third of the 80 million Americans who have been infected with coronavirus.
Long COVID is a condition that is uncertain. There is no test for long COVID, and an accurate number of people affected does not exist.
There are more than 23 symptoms noted, the most common symptoms are:
- chronic fatigue
- shortness of breath
- brain fog
- confusion
- memory loss
- heart rhythm irregularities
It is estimated that 100,000 people in our region have long COVID, with about 25,000 living in the City of Buffalo.
Registry data helps researchers gain a better understanding about long COVID. With this knowledge, they can help design research and treatment options.
We are developing a bank of collected biological samples from individuals with long COVID. Samples will be made available to researchers to understand the disease and develop innovative therapies.
We hope to provide seed money to explore innovative treatments, as well as get more funding.
The registry (also known as the UBCoV registry) is a survey that you can complete if you have or think you have long COVID.
The survey information will help clinical researchers understand long COVID in our community.
The registry gives you an opportunity to share your story, symptoms and experience with COVID-19 and long COVID.
Researchers are still learning about long COVID, its true definition and what recovery looks like. You can help them by signing up now.
The registry was developed in collaboration with:
Some good news: studies show that keeping up with vaccines may reduce the chances of developing long COVID.