Are you one of the nearly 100,000 Western New Yorkers estimated to have long COVID? Sign up for this registry and you can help researchers and clinicians gain a deeper understanding of long COVID’s prevalence and impact in our community.
We aim to identify individuals who have recovered from acute COVID, including those with long COVID. By signing up for our registry, you will ultimately be helping us:
- assess the extent of the long COVID problem in Western New York
- provide education to community members about long COVID
- identify potential volunteers to participate in clinical trials
Long COVID — also referred to as post-acute sequalae of SARS-CoV-2, or PASC — afflicts as many as a third of the nearly 80 million people across America who have been infected with coronavirus.
Long COVID is a chronic condition that remains uncertain. There is no test to detect long COVID, and a truly accurate number of people affected does not currently exist.
With more than 23 symptoms documented, the most common symptoms seem to be:
- chronic fatigue
- shortness of breath
- brain fog
- confusion
- memory loss
- heart rhythm irregularities
If you suspect you may have long COVID, we encourage you to sign up now for our long COVID registry.
It is estimated that close to 100,000 people in our region have long COVID, with about 25,000 residing in the City of Buffalo.
Examining the data submitted through the registry can help researchers and clinicians gain a better understanding about long COVID. With this deepened knowledge, they can help design research and treatment options for those with long COVID.
We’re developing a biorepository that will include systematically collected biological samples from individuals with long COVID. Samples and associated metadata will be made available to researchers at UB and affiliated institutions to understand the disease and develop innovative therapies.
We propose to provide seed money to explore innovative treatment ideas and lay groundwork for leveraging federal and industry funding.
Long COVID registry: What is it?
The registry (known as the UBCoV registry for short) is a survey, or a form, that you can complete if you have or think you have long COVID.
The registry information submitted will help clinical researchers understand long COVID in our community.
What information can I provide?
The registry gives you an opportunity to share your story, symptoms and experience with COVID-19 and long COVID.
How will the registry contribute to medical and scientific advances?
Studies vary in the prevalence of long COVID after COVID-19 infection, with reported incidences of 4 to 48%.
Researchers are still learning about long COVID, its true definition and what recovery looks like for patients. You can help them by registering now.
Who created this registry?
The UBCoV registry was developed as a result of a collaboration amongst:
Do COVID-19 vaccines lessen the likelihood of having long COVID?
Some good news: There is reason to believe that keeping up with vaccines may reduce the chances of developing long COVID.