Care for Rare: From Bench to Bedside

"Alone we are rare, together we are strong"

Overview

February 29th is the rarest day of the year, and on this date we will come together to raise awareness of rare diseases through education, networking, and advocacy.

This event aims to inspire UB students, faculty and staff, and our community partners to recognize what it means to care for rare.

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Event Details

Date: Thursday, February 29, 2024

Time: 1 - 4 p.m. ET (in person)

Location: Jacobs School of Medicine and Biomedical Sciences, 2nd Floor Atrium and Lecture Hall (2220A), Buffalo, NY 14203

Hosted by: Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo and the UB School of Pharmacy and Pharmaceutical Sciences

Agenda

Time Title Speakers
1 - 1:15 p.m. Opening Welcome
  • Margaret Hempling McGlynn, BS Pharm, MBA, Hon. Dr. Sci., President, Hempling Foundation for HCU Research, Co-Founder and President, HCU Network America
1:15 - 2 p.m.

Care for Rare: Bench

UB faculty highlighting their cutting-edge rare disease research 

  • Allison Brashear, MD, MBA, Vice President for Health Sciences, Dean, Jacobs School of Medicine and Biomedical Sciences
  • Yeh-Hsing Lao, PhD, Assistant Professor, Department of Pharmaceutical Sciences
2:00 - 2:45 p.m.

Networking Break and Poster Session

Light refreshments provided and prizes available!

  • Please consider presenting your work during our poster session. All research topics related to rare disease are welcome. Resharing previously presented posters is encouraged.
2:45 - 4:00 p.m.
Care for Rare: Bedside

UB faculty highlighting their work in rare disease diagnosis and clinical care
  • Joseph Biddle, MS, CGC, Genetic Counselor, UBMD Pediatrics
  • Osman Farooq, MD, Clinical Associate Professor, Department of Neurology, Jacobs School of Medicine and Biomedical Sciences
  • Beverly Schaefer, MD, Assistant Professor, Pediatric Oncology, Roswell Park Comprehensive Cancer Center, Clinical Assistant Professor of Pediatrics, Jacobs School of Medicine and Biomedical Sciences

Poster Submission

To reserve your spot, submit your poster title, author(s) and abstract (<300 words) when you register for the event. Easel space is limited!

Questions? Email Contact

Lindsey Alico Ecker, lmalico@buffalo.edu