Event

Conference

Rare Disease Day: Rare Can Be Anywhere

Date:
Friday, February 28, 2025
Time:
1:00 pm - 5:00 pm
Location:
Jacobs School, 2nd Fl. Atrium 955 Main St. Buffalo, NY 14203

Program Overview
Session A - Think rare, act early: Transforming lives through timely diagnosis
1. Describe the importance of community connections in providing support to patients and caregivers navigating
a rare diagnosis
2. Recognize the role of patient advocacy groups in bridging the gap between patients needs and provider
support
3. Identify three reliable, evidence-based resources to consult when encountering a new rare disease diagnosis
Session B - Educating Patients and Providers: How can resources and referrals be
empowering
1. Describe the importance of community connections in providing support to patients and caregivers navigating
a rare diagnosis
2. Recognize the role of patient advocacy groups in bridging the gap between patients needs and provider
support
3. Identify three reliable, evidence-based resources to consult when encountering a new rare disease diagnosis
ACCREDITATION
The University at Buffalo Jacobs School of Medicine and Biomedical Sciences is accredited by the ACCME to provide continuing medical education for physicians.
CERTIFICATION
The University at Buffalo Jacobs School of Medicine and Biomedical Sciences designates this live activity for a maximum of 2.5 AMA PRA Category 1 Credit(s)TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

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