Ep. 9: Care for Rare – Elevating Awareness & Innovation in Rare Diseases

Rare diseases — more than 7,000 conditions affecting 30 million people in the U.S. — are often misdiagnosed or misunderstood because of low prevalence and complex presentations. Find out how the Jacobs School is nurturing a culture that centers on awareness, advocacy, research and community partnership around rare diseases.

Host Allison Brashear, MD, MBA, is joined by two guests who are deeply involved in the Care for Rare movement. Mark D. Hicar, MD, PhD, is an associate professor of pediatrics and chief of pediatric infectious diseases. Meagan Collins Hutchinson is an MD-PhD trainee and organizer of UB’s Rare Disease Day event.