SOAR

UB Surgical Outcomes And Research (UB SOAR) Center was established in 2017 as a collaboration between the Jacobs School of Medicine and Biomedical Sciences' Department of Surgery and UB's School of Public Health and Health Professions.

Currently UB SOAR serves as hub for several surgery-centered research programs including research on obesity and bariatric outcomes, surgical oncology care delivery and outcomes research, trauma outcomes research, and transplant outcomes program. These programs jointly resulted in numerous publications and presentations at leading national research conference and have generated nearly $4 million dollars in research funding. In addition, UB SOAR provides research training and mentoring to a broad spectrum of UB trainees interested in careers in surgery including undergraduate, graduate (MPH, MS and PhD), clinical and research fellows and postdocs, and junior faculty (19 surgical trainees total since 2017).

UB SOAR training activities have been in part supported by NYS DOH-funded Center Grant for the Buffalo General Hospital, the Empire Clinical Research Investigator Program (ECRIP). The goal of this training program is to promote development of new clinical researchers, provide seed funding for future center grants and support a broad spectrum of research activities around the Center’s theme.  The goal falls directly in line with the mission of Kaleida Health to advance the health of our community. Furthermore, this Center’s aim is synchronous with Kaleida Health’s vision “to provide compassionate, high-value, quality care, improving health in Western New York and beyond.”

Training new generation of clinician leaders is one of the core priorities for UB and Kaleida Health. Clinical research skills is the fundamental tool set for academic physicians of the future. UB SOAR draws from research and mentorship expertise across multiple UB Schools and Centers including Jacobs School of Medicine and Biomedical Science, School of Public Health and Health Professions, Institute for Healthcare Informatics, the Clinical and Translational Research Center, Schools of Engineering and Social Work and College of Arts and Sciences.

The MPH and MS programs provide trainees with the necessary skills, knowledge and experience to work in health care delivery, public health, health insurance and other public and private healthcare and industry settings to inform population health programs, evaluate provider quality and impact of healthcare interventions, and assess organizational performance and patient outcomes.

Health Services Delivery and Administration is a quickly growing multidisciplinary field that includes management, finance, behavioral services, informatics, analytics, patient engagement and many other professional and research areas. Additional workshops, consultations and certificate programs are available to clinical trainees to accommodate their busy schedules and specific research interests.

ECRIP PROJECT DIRECTORS:

1.     Ekaterina Noyes PhD, MPH

2.     Liise Kayler MD, MS, FACS

FACULTY COLLABORATORS

1.     Aaron B. Hoffman MD, FACS

2.     Alan R. Posner MD, FACS

3.     John L. Butsch MD, FACS

4.     Csaba Gajdos MD, FACS, FSSO

5.     Meeghan Lautner MD. FACS

6.     W. Alan Guo MD, PhD, FACS

7.     Clarice Cooper MD, FACS

8.     Jeffrey Jordan MD, PhD, FACS

9.     Marcy Jordan, PhD

10.  Heather Link MD, MPH

11.  Henry Taylor PhD, MS

TRAINEES

ECRIP Fellows:

2022 fellows:

1.     Jessica Martinolich, MD

2.     Jospeh L’Huillier, MD

2019 fellows:

1.     Iman Simmonds, MD

2.     Justin Gray, MD

3.     Nikolas Zaphiros MD, MPH

4.     Albert Luong MD, MPH

2017 fellows:

1.     John Reinier Narvaez, MD

Non-ECRIP fellows:

1.     Syed A. Karim MD

2.     Arianne T. Train MD

3.     Matthew Burstein, MD

4.     Irada Ibrahim-Zada MD

5.     Marissa Novack MD

6.     Salini Hota MD

7.     Kaci Schiavone MD

8.     Jaafar Elnagar MD

Residents:

1.     John Reinier Narvaez, MD

2.     Alexandra Sima, MD

3.     Michael M. Wach, MD

4.     Eden Nohra, MD

5.     David Abramowitz, MD

6.     Tyler J. Maiers

Medical students:

1.     Anne Stoklosa

2.     Taylor Brophy

3.     Eylon Arbel

4.     Lindsay Nitsche

Student Statisticians:

1.     Lorin M. Towle-Miller

2.     Joseph D. Boccardo

3.     Hyun-Ah Lee

CURRENT GRANTS

  1. Promoting Shared Patient-Surgeon Decision Making To Optimize Utilization Of Ambulatory Based Procedures.
    CTSI Translational Pilot Studies Program    
    PI: Jessica Martinolich (2022 ECRIP Fellow)

  2. Video-Based Educational Approach to Increase Cancer Screening Among Racial Minorities and Low Health Literacy Populations
    M & T Bank                                                                            
    PI: Katia Noyes
    Total Amount: $50,000
    4/1/2022-12/31/2024

  3. Video-Based Educational Approach to Increase Cancer Screening Amongst Racial Minorities And Low Health Literacy Populations
    CTSI Translational Pilot Studies Program                            
    PI: Katia Noyes
    Total Amount: $50,000
    1/1/2023 - 12/31/2023 (No-cost extension approved till 12/31/2024)

  4. Disparities in Access and Outcomes of Weight Management in Western New York
    ECRIP                                                                                    
    PI: Katia Noyes
    Total Amount: $770,000
    7/1/22-6/30/24

  5. Implementing personalized cross-sector transitional care management to promote care continuity, reduce low value utilization, and reduce the burden of treatment for high-need, high-cost patients.
    NIH R01                                             
    PI: Hewner     
    Co-investigator: Katia Noyes
    Total Amount: $2,000,000
    2/1/21-1/31/2026

PENDING GRANTS                   

  1. Project ASTHMA - Aligning with Schools To Help Manage Asthma and Decrease Health Inequities
    NIH R01                                             
    PI: Holmes     
    Co-investigator: Katia Noyes
    1/1/24-12/31/28

  2. Comparative Effectiveness of Strategies for Study Recruitment of Racial Minorities and Low SES Populations
    CTSI Translation Science Pilot                                              
    PI: Katia Noyes
    1/1/25-12/31/25

  3. Setting Agenda for Investigation of Long COVID (SAIL)
    PCORI                                                                       
    MPI: Noyes/Sethi

  4. Increasing Lung Cancer Screening: An Urban Primary Care Health Center Approach
    NIH R03                                                                     
    PI: Somayaji
    7/1/22-6/30/24

COMPLETED GRANTS

  1. The evaluation and implementation of a novel digital solution for multidisciplinary tumor boards (MTBs): An MTB quality improvement feasibility study evaluating team decision-making process
    Roche Diagnostics International                               
    Site PI: Katia Noyes
    Total Amount: $137,665
    6/1/21-8/31/2023

  2. Preoperative respiratory muscle training to prevent postoperative pulmonary complications in patients undergoing resection for lung cancer
    NIH R01                                                         
    PI: Ray
    Co- investigator: Katia Noyes
    7/1/2018-6/30/2023                           

  3. School-Based Asthma Therapy to Reduce Disparities in Childhood Asthma: Dissemination and Implementation Evaluation
    NIH R01                     
    PI: Arcoleo     
    Subcontract PI/Co-Investigator: Katia Noyes
    Total Amount (subcontract): $83,981 Effort: Y1-Y3: 5%  Y4: 10%
    8/1/19-7/31/23

  4. Impact of deficiencies in immune nutrients on healthcare utilization in outcomes in the US
    Pharmavite                                                                            
    PI: Katia Noyes
    Total Amount: $104,804                     
    12/1/20-12/31/22

  5.  Disparities in access to bariatric surgery
    Buffalo Blue Sky                                                                    
    PI: Katia Noyes
    Total Amount: $30,000
    3/5/19-6/30/22 NCE

  6. Integration of CAncer survivorship into the Rural United States (ICaRUS)
    CTSI Translational Pilot Studies Program                            
    PI: Katia Noyes
    Total Amount: $49,973
    1/1/21-6/30/22

  7. Effect of weight management on disparities in cancer and other obesity-related comorbidities
    ECRIP                                                                        
    PI: Katia Noyes
    Total Amount: $574,082 NCE
    09/1/19-8/31/2022

  8. Efficacy of a Mobile Self-Management Education Program to Improve Kidney Transplant Adherence and Reduce Early Transplant Readmission.
    ECRIP                                                                        
    PI: Liise Kayler
    Total

  9. Problem Solving Skills Training in Adult Cancer Survivors: Bright IDEAS-AC
    NIH 1R21CA217382-01A1                                       
    MPI: Katia Noyes/Sahler                 
    Total Amount: $239,250          Effort: 15%
    6/1/2018-5/31/2021 NCE

  10. Developing Novel Strategies to Increase Utilization of Renin Angiotensin-Aldosterone System (RAAS) Blockade Drugs in Patients with Heart Failure
    K12 Faculty Scholar Program in Implementation Science   
    PI: Chang
    Primary Research Mentor: Katia Noyes
    9/1/18-8/31/21

  11. Development and Implementation of a Chronic Obstructive Pulmonary Disease Care Transition Intervention Integrating Pharmacists onto the Care Team
    K12 Faculty Scholar Program in Implementation Science   
    PI: David Jacobs
    Co-Primary Research Mentor: Katia Noyes

  12. Examining the feasibility of a community health worker program embedded in Western New York community pharmacies to address social determinants of health
    Total Amount: $47,312                                               
    Co-Investigator: Katia Noyes
    1/1/21-12/31/21

  13. Examining Factors Associated with Increased Physical Trauma for Children and Youth with Special Health Care Needs
    CYSHCNET Emerging Investigator                         
    PI: Lillvis         
    Mentor: Katia Noyes
    Total Amount: $16,500
    9/1/20-8/31/21

  14. Linking New York State Databases to Identify Risk Factors and Gaps in Care for Rural and Urban Health Disparities in Lung Cancer
    CTSA Pilot Grant                   
    PI: Somayaji              
    Co-investigator: Katia Noyes
    Total Amount: $50,000           
    4/1/18-6/30/21 NCE

  15. Cost-effectiveness of Nutritional Therapy in Cancer Patients
    Pharmavite                                                                
    Site PI: Katia Noyes
    Total Amount: $62,177                       
    12/17/19-12/20/20

Scholarship, Fellowships , Awards

  •  2023 Michael Zinner Health Services Research Fellowship
    Recipient: Jessica Martinolich (2022 ECRIP Fellow)

  • 2022 2022 Medical Student Summer Research Award by Society of American Gastrointestinal and Endoscopic Surgeons (SAGES)
    Recipient: Eylon Arbel

  • Winner, Upstate New York American College of Surgeons Committee on Trauma 2023.
    Recipient: Joseph C. L’Huillier    
    Resident’s Paper Competition (Gun Violence Revictimization in New York State: What Increases the Risk of Being Shot Again?)

  • Outstanding Resident Teacher Award, Association for Surgical Education, 2023.
    Recipient: Joseph C. L’Huillier

  • Recognition of Excellence Award, Association for Surgical Education, 2023.
    Recipient: Joseph C. L’Huillier

  • 1st Place Oral Presentation, University at Buffalo Department of Surgery 19th Annual Research Day (On the Journey to Measure Expertise – What Can Functional Imaging Tell Us?). 2023.
    Recipient: Joseph C. L’Huillier

  • 3rd Place Oral Presentation, University at Buffalo Department of Surgery 19th Annual Research Day (Association of Age and Frailty with Clinical Outcomes in Geriatric Patients with Rib Fractures). 2023.
    Recipient: Joseph C. L’Huillier

  • 1st Place Poster Presentation—Group 1, University at Buffalo Department of Surgery 19th Annual Research Day (Competition Based Learning: Inspiring Interest in Surgical Skills Development). 2023.
    Recipient: Joseph C. L’Huillier

  • Winner, Upstate New York American College of Surgeons Committee on Trauma. Resident’s Paper Competition (MTP Thresholds and Mortality in Geriatric Trauma Patients: Are They Too Old or Too Frail?). 2022.
    Recipient: Joseph C. L’Huillier

UB SOAR has established active research collaborations with many regional partners, including:
  • Roswell Park Comprehensive Cancer Center, Independent Health
  • NYS Cancer Consortium
  • Western NY VA Research Center (VISN 2)
  • ECMC Level I Trauma Center
  • Children’s Healthy Weigh of Buffalo (CHWOB)
  • Center for Rural Mental Health at the School of Nursing
  • Ergonomics and Biomechanics Lab at UB School of Engineering
  • Center for Virtual Reality-based Provider Training at UB School of Social Work
  • African American Health Disparities Task Force
  • Patient Voices Network
  • Rural Outreach Center and Primary Care Research Institute at UB Department of Family Medicine
  • UB Clinical and Translational Research Institute.

1.     Narvaez* JRF, Noyes K, Nie J, Kayler LK. Outcomes of DCD kidneys recovered for transplantation with versus without pre-mortem heparin administration. Clin Transplant. 2019 Jul;33(7):e13624.

2.     Narvaez* JRF, Nie J, Noyes K, Layler LK. Transplant outcomes of DCD livers recovered with vs. without pre-mortem heparin administration. Liver Transpl. 2020 Feb;26(2): 247-255. Epub 2019 Nov 22.

3.     Noyes K, Myneni AA, Schwaitzberg SD, Hoffman AB. Quality of MBSAQIP data: bad luck, or lack of QA plan? Surg Endosc. 2020 Feb;34(2):973-980. Epub 2019 June.

4.     Hoffman AB, Myneni AA, Orom H, Schwaitzberg SD, Noyes K. Disparity in access to bariatric surgery among African-American men. Surg Endosc. 2020 Jun; 34(6): 2630-2637. Epub: 2019 Aug 5.

5.     Train* AT, Hu J, Narvaez JRF, Towle-Miller LM, Wilding GE, Cavuoto L, Noyes K, Hoffman AB, Schwaitzberg SD. Teaching surgery novices and trainees advanced laparoscopic suturing: a trial and tribulations. Surg Endosc. 2020 Oct 13. Epub ahead of print.

6.     Smith S, Nie J, Noyes K, Keller M, Kayler L. Technology access and use among kidney transplant candidates vulnerable to health disparities. Clin Transplant. 2020 Nov;34(11):e14012. Epub 2020 Aug 4.

7.     Maiers TJ, Abramowitz DJ, Pominville R, Myneni AA, Noyes K, Bodkin Iii JJ. Management of genitourinary foreign bodies in a predominantly incarcerated population. Can J Urol. 2020 Dec;27(6):10444-10449.

8.     Hoffman AB, Myneni AA, Towle-Miller LM, Karim SA, Train AT, Burstein M, Schwaitzberg SD, Noyes K. The Early (2009–2017) Experience with Robot-Assisted Cholecystectomy in New York State. Annals of Surgery: 2021 Sept 1; 274(3):e245-e252. Epub May 2021.

9.     Kayler LK, Nie J, Noyes K. Hardest-to-place kidney transplant outcomes in the United States. Am J Transplant: 2021 Nov;21(11):3663-3672. Epub 2021 Jul 20.

10.  Luong* A, Nie J, Noyes K, Clarke T, Kayler L. The Stanford Integrated Psychosocial Assessment for Transplant and Early Hospital Readmission after Kidney Transplantation. Austin Med Sci. 2021 Nov; 6(3): 1058.

11.  Kayler LK, Seibert RE, Dolph BA, Keller MM, Cadzow RB, Nie J, Noyes K, Feeley TH. Video education to facilitate patient outreach about living kidney donation: A proof of concept. Clin Transplant. 2021 Dec;35(12):e14477. Epub 2021 Sep 23.

12.  Torquati M, Mendis M, Xu H, Myneni AA, Noyes K, Hoffman AB, Omotosho P, Becerra AZ. Using the Super Learner algorithm to predict risk of 30-day readmission after bariatric surgery in the United States. Surgery. 2022 Mar;171(3):621-627. Epub 2021 Jul 31.

13.  Noyes K, Zapf AL, Depner RM, Flores T, Huston A, Rashid HH, McNeal D, Constine LS, Fleming FJ, Wilding GE, Sahler OJZ. Problem-solving skills training in adult cancer survivors: Bright IDEAS-AC pilot study. Cancer Treat Res Commun. 2022;31:100552. Epub 2022 Mar 25.

14.  Zaphiros* NH, Nie J, Noyes K, Luong A, Kayler LK. Donor rhabdomyolysis, acute kidney injury, and kidney transplant outcomes. Clin Transplant. 2022 Apr;36(4):e14569. Epub 2022 Jan 10.

15.  Somayaji* D, Seo YS, Wilding G, Noyes K. A Multilevel Approach to Investigate Relationships Between Health Care Resources and Lung Cancer. Nurs Res. 2022 May 5. PMID: 35510544

16.  Bengert E, Towle-Miller L, Boccardo J, Mercene G, Ohtake PJ, Balkundi P, Elkin PL, Balthasar J, Murphy TF, Noyes K. Novel approach for tracking interdisciplinary research productivity using institutional databases. Journal of Clinical and Translational Science. 2022 Aug 30;6(1):e119.

17.  Lillvis DF, Sheehan KM, Yu J, Noyes K, Bass KD, Kuo DZ. Characterizing physical trauma in children and youth with special health care needs. J Trauma Acute Care Surg. 2022 Sep 1;93(3):299-306. Epub 2022 Mar 14.

1.     Selected as a Finalist for the Joseph Tepas Non-MD Paper Competition

18.  Simmonds* I, Towle-Miller LM, Myneni AA, Gray J, Jordan JM, Schwaitzberg SD, Hoffman AB, Noyes K. Is New York State good at managing hollow viscus injury? Surg Endosc. 2022 Sep;36(9):6789-6800. Epub 2022 Jan 7.

19.  Burstein MD, Myneni AA, Towle-Miller LM, Simmonds I, Gray J, Schwaitzberg SD, Noyes K, Hoffman AB. Outcomes following robot-assisted versus laparoscopic sleeve gastrectomy: the New York State experience. Surg Endosc. 2022 Sep;36(9):6878-6885. Epub 2022 Feb 14.

20.  Light* J, Ruh C, Ott M, Banker C, Meaney D, Doloresco F, Noyes K. The Effect of Pharmacy-Led Medication Reconciliation on Odds of Psychiatric Relapse at a Community Hospital. Journal of Pharmacy Practice. 2022 Oct. Epub ahead of print.

21.  Wach MM, Myneni AA, Miller L, Boccardo J, Ibrahim-Zada I, Schwaitzberg SS, Noyes K, Gajdos C. An assessment of perioperative outcomes for open, laparoscopic, and robot-assisted pancreaticoduodenectomy in New York State. J Surg Oncol. 2022 Dec;126(8):1434-1441. Epub 2022 Aug 20.

22.  Yousefi-Nooraie R, Noyes K. Editorial: Challenges for the provision of guideline-recommended cancer care to rural and medically underserved communities. Front. Health Serv. 2023 Jan. 2:1113916.

23.  Myneni AA, Brophy T, Harmon B, Boccardo JD, Burstein MD, Schwaitzberg SD, Noyes K, Hoffman AB. The impact of disclosure of conflicts of interest in studies comparing robot-assisted and laparoscopic cholecystectomies-a persistent problem. Surg Endosc. 2023 Feb;37(2):1515-1527. Epub 2022 Jul 18.

24.  Myneni AA, Simmonds I, Orom H, Anderson LM, Singh R, Homish GG, Wright AJ, Pigott S, Onoh JC, Hoffman AB, Noyes K. A qualitative analysis of Black men's attitudes toward obesity and bariatric surgery. Surg Obes Relat Dis. 2023 Apr 5:S1550-7289(23)00136-3. Epub ahead of print.

25.  L’Huillier JC, Jensen RM, Clanahan JM, Lund S, Myneni AA, Noyes K, Cooper CA, Nahmias J, Parikh PP, Rogers DA, Falcone JL. The surgical education research fellowship: a qualitative analysis of recent graduates’ perceptions. Global Surgical Education. Journal of Association for Surgical Education. Nov 2, 2023. Volume 2, Article 103.

26.  L’Huillier JC, Hua S, Logghe HJ, Myneni AA, Noyes K, Guo WA. (2023). Transfusion futility thresholds and mortality in geriatric trauma: Does frailty matter? American Journal of Surgery. Aug 5, 2023; S0002-9610(23)00422-1

27.  Chopko A, Tian M, L’Huillier JC, Filipescu R, Yu J, Guo WA. Utility of intracranial pressure monitoring in patients with traumatic brain injuries: a propensity score matching analysis of TQIP data. Eur J Trauma Emerg Surg. Feb 16, 2023. Online ahead of print.

28.  Ruggiero N, L’Huillier JC, Marine N, Burns O, Mawani F, Sanders M, Abbas A, Adams TM, Santos BF, Wirengard YR, Rosser JB. Perceptions of Competition-Based Learning after a Brief Experience. Surg Innov. 2023 Oct 13: 15533506231207438.

29.  L’Huillier JC, Moreci R (co-first), Gates R, Thelen A, George BC, Jung S. The Surgical Education Seminar Series: A novel, free resource from the Association for Surgical Education and the Society for Improving Medical Professional Learning. Global Surg Educ. 2023;2(96).

30.  L’Huillier JC, Lund S, Anand A, Jensen RM, Williamson AJH, Clanahan JM, Moreci R, Gates RS. Thriving as a surgical intern: Three tips from the collaboration of surgical education fellows (CoSEF). Ann Surg Open. 2023 Sept;4(3):p e306.

31.  Epstein A, Lim R, Johannigman J, Fox CJ, Inaba K, Vercruysse GA, Thomas RW, Martin MJ, Konstantyn G, Schwaitzberg SD. Collaborators: Epstein D, Ginzburg E, Michael R, Brook G, Scarborough AJ, Iskander J, Mercado P, Rallo MS, Lukan J, L’Huillier JC, Nahnybediuk M, Popkov A. Putting medical boots on the ground: Lessons from the war in Ukraine and applications for future conflict with near peer adversaries. J Am Coll Surg. 2023 Aug 1;237(2):364-373.

New York State Department and Research Cooperative System

SPARCS is a comprehensive all payer data reporting system established in 1979 as a result of cooperation between the healthcare industry and government. SPARCS currently collects patient-level detail on patient characteristics, diagnoses and treatments, services, and charges for each hospital inpatient stay and outpatient (ambulatory surgery, emergency department, and outpatient services) visit; and each ambulatory surgery and outpatient services visit to a hospital extension clinic and diagnostic and treatment center licensed to provide ambulatory surgery services.

https://www.health.ny.gov/statistics/sparcs/access/

New York State and New York City Bureau of Vital Statistics

The Bureau of Vital Statistics is responsible for the registration, amendment, analysis, and reporting of all vital events in NYC including births, deaths, and terminations of pregnancy.

https://www.nyc.gov/site/doh/data/data-sets/vital-statistics-data.page
e

SEER-Medicine

The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about Medicare beneficiaries with cancer. The data come from the Surveillance, Epidemiology and End Results (SEER) External Web Site Policy program of cancer registries that collect clinical, demographic and cause of death information for persons with cancer and the Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.

https://healthcaredelivery.cancer.gov/seermedicare/obtain/

MBSAQIP Metabolic Bariatric Surgery Accreditation and Quality Improvement Program

The MBSAQIP Participant Use Data File (PUF) is a is a HIPAA-compliant data file containing cases submitted to the MBSAQIP Data Registry. The PUF contains patient-level, aggregate data and does not identify hospitals, health care providers, or patients.

https://www.facs.org/quality-programs/accreditation-and-verification/metabolic-and-bariatric-surgery-accreditation-and-quality-improvement-program/participant-use-data-file-puf/

NSQIP National Surgical Quality Improvement Program

The NSQIP Participant Use Data File (PUF) is a is a HIPAA-compliant data file containing cases submitted to the NSQIP Data Registry. The 2022 PUF contains 1,011,899 cases submitted from 702 NSQIP-participating sites. Sixteen other separate NSQIP PUFs, containing a rich database of more than 10.6 million cases, are also available. Only cases included in corresponding Semiannual Report (SAR) risk-adjustment calculations are in the PUF datasets.

https://www.facs.org/quality-programs/data-and-registries/acs-nsqip/participant-use-data-file/

NSQIP-Pediatric National Surgical Quality Improvement Program - Pediatric

The Pediatric Participant Use Data File (PUF) is a HIPAA-compliant data file containing cases submitted to the ACS NSQIP Pediatric. The PUF contains patient-level, aggregate data and does not identify hospitals, health care providers, or patients.

https://www.facs.org/quality-programs/data-and-registries/pediatric/participant-use-data-file/

TriNetX

This program allows access to searchable, de-identified clinical patient data. It contains data from some 800,000 UB|MD patients' electronic health records. Investigators can have access to UBMD and Kaleida Health data with ECMC and GPPC Network data soon to be added.  In additional national and international data can also be accessed.

https://www.buffalo.edu/ctsi/cores/clinical-research-office/educational-modules/i2b2-and-trinetx--an-introduction.html

Independant Health Assocation

This large health insurance company data covers Western New York Counties served by IHA. Data from inpatient admissions, ER, urgent care and outpatient visits can be requested.

Please contact Jessica Thomas, Director of Quality Programs at IHA for data requests at: Jessica.Thomas@independenthealth.com

American Medical Association Physician Data

Physician characteristics data can be requested for healthcare research. This data is relatively expensive.

mmslists.com or 1-800-MED-LIST

HealthNow – Highmark BlueCross

D-identified data from individuals covered by Highmark Blue Cross Blue Shield.

Request data access from UB’s Institute for Healthcare Informatics

Uniform Data System

Data from inpatient rehabilitation and skilled nursing home facilities.

Request data from UDSMR: https://www.udsmr.org/

NHANES National Health and Nutrition Examination Survey

The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations.

https://wwwn.cdc.gov/nchs/nhanes/Default.aspx

National Health Interview Survey

The National Health Interview Survey is a survey collecting information on the health, health care access, and health behaviors of the civilian, non-institutionalized U.S. population, with digital data files available from 1963 to present. IPUMS Health Surveys harmonizes these data and allows users to create custom NHIS data extracts for analysis.

https://nhis.ipums.org/nhis/

Department of Veterans Affairs Open Data Portal

The Department of Veterans Affairs Open Data Portal provides de-identified health data freely to the public. Open Data provides a browsable website as well as a set of programming interfaces (APIs) allowing websites, applications and other software to consume machine readable data. This platform is part of an initiative to promote entrepreneurship, innovation, and government transparency.

https://www.data.va.gov/

National Trauma Data Bank (NTDB)

The National Trauma Data Bank (NTDB) is the largest trauma database in the United States. NTDB creates and shares research datasets and descriptive annual reports containing patient demographics, injuries, and outcomes.

www.facs.org/quality-programs/trauma/quality/national-trauma-data-bank/

NYU Health Evaluation and Analytics Lab Dataset

A comprehensive New York State Medicaid claims dataset is provided to researchers by the Health Evaluation and Analytics Lab at New York University (NYU). The dataset is a result of collaboration between NYU and The New York State Department of Health and is used to improve the quality of care and outcomes for those who rely on Medicaid.

https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/health-behavior/section-health-choice-policy-evaluation/research/health-evaluation-analytics-lab/dataset

Scientific Registry of Transplant Recipients (SRTR)

The Scientific Registry of Transplant Recipients (SRTR) receives data primarily from the Organ Procurement and Transplantation Network (OPTN) to provide summary reports and analyses to the transplant community. OPTN’s current data collection system is UNet which includes data from US transplant and organ donations since 1987.

www.srtr.org/about-the-data/the-srtr-database/

Statewide Planning and Research Cooperative System (SPARCS)

The Statewide Planning and Research Cooperative System (SPARCS) is a data reporting system developed in 1979 by the healthcare industry and government. SPARCS collects a comprehensive set of patient data about hospital use including diagnoses, treatments, and charges for inpatient admissions, emergency department, outpatient and ambulatory tests and procedures.

www.health.ny.gov/statistics/sparcs/

Unified Data System for Medical Rehabilitation (UDSMR)

The Unified Data System for Medical Rehabilitation (UDSMR) maintains the largest medical rehabilitation outcomes database in the world. UDSMR provides subscribers with intuitive software tools allowing them to access data, track outcomes and create reports.

www.udsmr.org/

Vascular Quality Initiative (VQI)

The Vascular Quality Initiative (VQI) collects and shares data with over 650 participating medical centers to improve vascular health care from the perspectives of cost, effectiveness, quality and safety. VQI provides de-identified datasets to physicians to support research projects in the field of vascular medicine.

www.vqi.org/