We have been actively involved in clinical research for more
than a decade, focused primarily on cystic fibrosis. Our physicians
regularly publish their work in scholarly journals, and our
ancillary care providers are regular participants in national
meetings. Our research coordinator is certified by the Association of Clinical Research
Professionals.
The Lung and Cystic Fibrosis Center is the recipient of a
national Cystic Fibrosis
Foundation Clinical Research Facilitation Award and Quality
Care Award.
Our patients may be seen by a pediatric pulmonologist or nurse
practitioner with expertise in pediatric pulmonology. Our clinical
staff includes a respiratory therapist with experience with durable
medical equipment, a dietitian with expertise in management of poor
growth related to pulmonary disease and a social worker who can
assist with patients who have complex medical needs.
In collaboration with the Division
of Genetics, we provide follow-up care for infants with
positive newborn screens for cystic fibrosis.
The Cystic Fibrosis Center of Western New York is certified by
the national Cystic Fibrosis Center as a Care, Teaching and
Research Center. It includes both pediatric and adult programs,
with care provided to adults by internal medicine certified
specialists. Our Cystic Fibrosis Center has consistently received
excellent reviews during peer-review site visits.
We work cooperatively with the Department of Neurology to
diagnose and manage sleep-related respiratory problems.
We have the only New York State-designated Apnea Program in
Western New York and provide management for children who are
discharged home on oxygen, apnea and bradycardia monitors. We
evaluate and manage children who need breathing assistance through
use of CPAP, BiPap, mechanical ventilation, cough-assist devices
and other therapies to improve airway clearance.